"Farkas" <rafarkas@a...> wrote:
Janet,
2 years ago when I was first dx, I was e+ and then they said her2+,
but when they sent the sample to the US for a FISH test ( this was done so that I could qualify for a study; be very cautious when they say they want you in a study for a new drug!)and the test came back as negative. >
This proves that a second opinion is always worth it, and that I
trusted my gut instinct that it was impossible that I was her2+. Of course I also declined chemo. Incidentally I had a masectomy when I was first dx and a year later here I am with a dxs again. I had 2 nodes affected of the 13 they removed.
I had 1-2 swallon nodes recently, but I am sure they have reduced
when I checked them today. I have been putting a poultice of plantain on them 2x a day. I pick these from the garden.
Hi Anna, Thank you so much for your nice emails. I have been so
overwhelmed with everything, I'm sorry it took me so long to answer
you. After the mamogram they did a core biopsy...ER/PR weakly
positive at 20% Her 2+ but FISH came back negative. I got to spend
20 minutes with the radiologist in her office looking at the
mamograms...the long fingers (not the technical term) made her
believe that it was aggressive, as opposed to a nice round lump. I
do question everything and have made quite a few people very
unhappy! I am working on the mental part too, through hypnotherapy
and meditation, I bought a rebounder yesterday, and a Gerson
practicioner came through my house and CLEANED it out. She threw
away everything from detergents to mint flavored dental floss! The
wierd thing that is going on with my family and lymphoma...It can't
be genetic because both my mother and father have it...the only thing
I can think of is when I was a child we lived on a beautiful ranch
way back in the country and the guy 2 miles up the road had a septic
tank service/wrecked car service and dumped all that stuff on his
property. We all had well water...who knows.
I just wrote Karl about my discoveries just before going to see my
surgeon, radiofrequency ablation, instead of surgery. I gave a
little overview in that email. If you're interested let me know.
Did you have radiation or chem after your surgery? I know that if I
have either of those I will compromise my immune system so much that
this problem with the lymphoma will rear its ugly head. My dad has
never spun out of the radiation he had.
Thank you for your kind emails. It has been such a support, I don't
feel alone. Hugs, Janet
