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Brain tumor re-growth-(final report)


bnbgold
 

As I have reported previously, my wife who had a metastatic brain
tumor removed on March 15 did seemingly very well for over 2 months
and then started a gradual fatiguing decline until she was totally
exhausted.

Since that report there was only more gradual decline, with eventual
loss of each functional ability. At no time did she have pain nor
nausea, and also we had no contact with oncologists or any scans which
would permit us to know more. It would seem highly likely that the
tumor returned. I was in denial thinking we would find a way for her
to recover, and trying up until just a few days before she passed away
last Sunday.

With hindsight I now wish we at least had had scans maybe 2 months
ago, which might have shown early stage re-growth. Which might have
been eligible for non-invasive radiosurgery such as `gamma knife'.
(the oncologist in March had told us while we were in the ICU that she
needed whole brain radiation and this might give an average 4-6 months
to live while without averages were more like 2-3 months!). My
current thinking is that we needed the new tumor dealt with to give us
more time for overcoming the cancer.

- Ben (devastated)


 

Dear Ben,

I'm so very sorry that your wife could not overcome the cancer.
My deepest sympathy goes out to you and your family.

I found your message from May 31st when you explained the complexity
of her condition. You wrote:
"My wife has been on the BP for over two months. She was in a state
of robust health and high energy before evidence of a brain tumor
appeared in February. The tumor was surgically removed in March and
it was learned that the primary cancer was in the lung with
metastasis likely to the liver, lymph, and adrenal, as well as to the
brain. She is avoiding Oncologists and will not be going the
chemo/radiation route."

It sounds as though the cancer was wide-spread throughout her body.
It must have been very aggressive considering that she was healthy
in February and by March had the kind of complications that you
explained in your message above.

I'm saddened that cancer came into your lives at all. You will be in
my thoughts and prayers.

Sandra



"bnbgold" wrote:
As I have reported previously, my wife who had a metastatic brain
tumor removed on March 15 did seemingly very well for over 2 months
and then started a gradual fatiguing decline until she was totally
exhausted.
Since that report there was only more gradual decline, with eventual
loss of each functional ability. At no time did she have pain nor
nausea, and also we had no contact with oncologists or any scans
which would permit us to know more. It would seem highly likely that
the tumor returned. I was in denial thinking we would find a way
for her to recover, and trying up until just a few days before she
passed away last Sunday.
With hindsight I now wish we at least had had scans maybe 2 months
ago, which might have shown early stage re-growth. Which might have
been eligible for non-invasive radiosurgery such as `gamma knife'.
(the oncologist in March had told us while we were in the ICU that
she needed whole brain radiation and this might give an average 4-6
months to live while without averages were more like 2-3 months!). My
current thinking is that we needed the new tumor dealt with to give
us more time for overcoming the cancer.
- Ben (devastated)


bnbgold
 

Although there is no way of knowing, it is my thought that the BP may
have done well with the lung, and suspicious spots on the liver, lymph
and adrenal - but it was the returning brain tumor that was too much?
She showed no external symptoms in her body.

In Navarro HCG results we had a '57' right after the surgery followed
by another '57' 6 weeks later and the final one last week of '56'. So
this showed no evidence of increase.

She/we have spent our lifetimes focusing and trying to avoid all
things which might lead to illness. She had not been to
a doctor nor even had so much as an aspirin in over 40 years. Her
vitality had been extreme up until this struck out of nowhere. She led
a passionate, intense, driven life, as was her choice and style. She
lived life on her terms, and that is the way she wanted it.

- Ben



"Sandra Olson" wrote:

It sounds as though the cancer was wide-spread throughout her body.
It must have been very aggressive considering that she was healthy
in February and by March had the kind of complications that you
explained in your message...


Meredith W.
 

Ben, I have been wondering about you both! I am so sorry for your loss. You are such a sweetheart and took care of her so well. God Bless you Ben!
Meredith


On 8/17/07, bnbgold wrote:
As I have reported previously, my wife who had a metastatic brain
tumor removed on March 15 did seemingly very well for over 2 months
and then started a gradual fatiguing decline until she was totally
exhausted.
Since that report there was only more gradual decline, with eventual
loss of each functional ability. At no time did she have pain nor
nausea, and also we had no contact with oncologists or any scans which would permit us to know more. It would seem highly likely that the tumor returned. I was in denial thinking we would find a way for her to recover, and trying up until just a few days before she passed away last Sunday.........
- Ben (devastated)


 

Dear Ben,
I am so sorry to hear of your wife's passing. I hope that you will
find comfort in knowing she was not in lots of pain and she was able
to live life her way.
She was blessed to have such a caring and compasionate husband to
help her in good times and bad. I hope you will not beat yourself up
over second guessing and hind sight. Being there with her and for her
was a huge blessing to her.
You will be in my prayers-
Martha


-- "bnbgold" wrote:

As I have reported previously, my wife who had a metastatic brain
tumor removed on March 15 did seemingly very well for over 2 months
and then started a gradual fatiguing decline until she was totally
exhausted.

Since that report there was only more gradual decline, with eventual
loss of each functional ability. At no time did she have pain nor
nausea, and also we had no contact with oncologists or any scans
which would permit us to know more. It would seem highly likely that
the tumor returned. I was in denial thinking we would find a way
for her to recover, and trying up until just a few days before she
passed away last Sunday.

With hindsight I now wish we at least had had scans maybe 2 months
ago, which might have shown early stage re-growth. Which might have
been eligible for non-invasive radiosurgery such as `gamma knife'.
(the oncologist in March had told us while we were in the ICU that
she needed whole brain radiation and this might give an average 4-6
months to live while without averages were more like 2-3 months!). My
current thinking is that we needed the new tumor dealt with to give
us more time for overcoming the cancer.

- Ben (devastated)


J Brantley
 

So sorry to hear this report. It's good to hear she had no pain.
May God bless you for the care you provided to your sweet wife and may He give you peace and comfort in this time of sorrow.
My tears flow for you.

Jonnie

----- Original Message -----

On 8/17/07, bnbgold wrote:
> As I have reported previously, my wife who had a metastatic brain
> tumor removed on March 15 did seemingly very well for over 2 months
> and then started a gradual fatiguing decline until she was totally
> exhausted.
> Since that report there was only more gradual decline, with eventual
> loss of each functional ability. At no time did she have pain nor
> nausea, and also we had no contact with oncologists or any scans which would permit us to know more. It would seem highly likely that the tumor returned. I was in denial thinking we would find a way for her to recover, and trying up until just a few days before she passed away last Sunday.........
- Ben (devastated)


texasredstar
 

Syd and I send our deepest sympathies for your loss. You will be in
our prayers.

Margaret <><
Houston

--- In FlaxSeedOil2@..., "bnbgold" <alaska@...> wrote:

As I have reported previously, my wife who had a metastatic brain
tumor removed on March 15 did seemingly very well for over 2 months
and then started a gradual fatiguing decline until she was totally
exhausted.

Since that report there was only more gradual decline, with eventual
loss of each functional ability. At no time did she have pain nor
nausea, and also we had no contact with oncologists or any scans which
would permit us to know more. It would seem highly likely that the
tumor returned. I was in denial thinking we would find a way for her
to recover, and trying up until just a few days before she passed away
last Sunday.

With hindsight I now wish we at least had had scans maybe 2 months
ago, which might have shown early stage re-growth. Which might have
been eligible for non-invasive radiosurgery such as `gamma knife'.
(the oncologist in March had told us while we were in the ICU that she
needed whole brain radiation and this might give an average 4-6 months
to live while without averages were more like 2-3 months!). My
current thinking is that we needed the new tumor dealt with to give us
more time for overcoming the cancer.

- Ben (devastated)


 

Ben,

It sounds like your wife was dynamic and knew which paths to take. You
supported her decisions, and quite obviously helped her maintain them to the end.

You are lucky (you may not feel like it now) to have had such a wonderful
and active life together. And to be able to live your chosen life. This is
what true life is about. What a life well spent. She will always be with you,
in your head, your heart, your memories, and in all the other lives she has
touched.

I doubt she would have chosen any further allopathic treatments, from what
you said of her personality. You were there for her and your love must have
meant so much to her, you did everything you could.

As someone who has had cancer, I have thought a lot about death, and I've
come to realise that the real pain is with the people around me and not in
myself. I could cope with what was and is thrown at me. She would not want you
to suffer.

Be strong, and I hope you find peace in the knowledge there was nothing more
you could have done.

Michele


bnbgold
 

Michele - your kind words (and those of the others here) mean so much
to me. Thank you!

Yes - Barbara was not interested in further conventional care (the
initial surgery seemed absolutely necessary in March or time would
have been very short). To her recovery meant regaining her former
level of independence and vitality. Compromise was not in her nature.
If one had to choose a single word to define Barbara; 'intense' might
well be the one. She did not fear the end.

We had 49 years together and were thinking that was just the start!

- Ben




--- In FlaxSeedOil2@..., manofharrod@... wrote:

Ben, It sounds like your wife was dynamic and knew which paths to
take. You supported her decisions, and quite obviously helped her
maintain them to the end.

You are lucky (you may not feel like it now) to have had such a
wonderful and active life together. And to be able to live your
chosen life.
This is what true life is about. What a life well spent. She will
always be with you, in your head, your heart, your memories, and in
all the other lives she has touched.

I doubt she would have chosen any further allopathic treatments,
from what you said of her personality. You were there for her and
your love must have meant so much to her, you did everything you could.

As someone who has had cancer, I have thought a lot about death, and
I've come to realise that the real pain is with the people around me
and not in myself. I could cope with what was and is thrown at me.
She would not want you to suffer.

Be strong, and I hope you find peace in the knowledge there was
nothing more you could have done.

Michele


 

Ben - I am so, so sorry for your loss. It had to be so hard to
watch the vibrant woman you love lose her energy and health.

Your description of your wife is so wonderful and reminds me of my
mom who died from ovarian cancer last month. And, while everyone
tells us that at least we had the time we had, and now the memories,
I would much rather have her. Grief is a process...

My heart, prayers and thoughts go out to you and your family.

-Kim

bnbgold wrote:
She/we have spent our lifetimes focusing and trying to avoid all
things which might lead to illness. She had not been to
a doctor nor even had so much as an aspirin in over 40 years. Her
vitality had been extreme up until this struck out of nowhere. She
led a passionate, intense, driven life, as was her choice and style.
She lived life on her terms, and that is the way she wanted it.
- Ben