开云体育

A new chat has been created: Dana was diagnosed with LBD after 6 years of being told it was Complex PTSD. In the time since his diagnosis we have made adjustments to our home, gotten him a New step2 Walker, medical guardian pendant, and I now write his daily schedule on a white board. Some days when we are out he sees things as if for the. First time ,other days he knows what's going on. Lewy body dementia is that way. As a care giver it is hard to understand. We took care of POAs and such while he was still doing well.Our neurologist started him on Rivastigmine which gave him horrible head aches and stomach pain so that is a thing of the past. I purchased an electronic medication dispenser that will alarm to remind him to take his medication. I refill the cassette every Sunday and it is good for 7 days at a time. Dana is still able to attend certain appointments by himself using a senior ride service. They call him when they are 10 minutes out to make sure he is ready. We are trying to adjust to this curve ball that has been thrown our way. We struggle with the changes and adaptation th as t is required on a daily basis. I still work full time and am trying to arrange for a home companion to come by a couple days per week. I think Dsna would enjoy adult daycare but it is not financially feasible at this time. I am exploring different ways to cut expenses to provide more care for him. Most days he doesn't complain but I know the days get long for him.he is still able to accomplish his ADLs without assistance which helps. I don't do well with uncertainty so I find myself anxious when I think of our future. Lewy Body you are a theft. You are zdx lowly taking the person I married and stealing them one day at a time. I don't like you, and struggle with anger and deep sadness as I watch his life fade in front of me. He was so active and now he struggles with safety and perception. One day at a time is the best we can do right now. View/Join This Chat